Today is my dad's 59th birthday and even though it is dark and dreary out this morning, I couldn't be happier inside. Today my class is having a party to celebrate the end of the marathon and my father's day of birth. We've been looking forward to this all week and I'm sure it will be well worth the wait. I couldn't think of a better way to honor my dad. I pray today that he feels how much he means to all of us and the love that he instilled in our hearts. The students have to run the 26th mile today so I ask that you all pray along with me that the weather cooperates. Even though this marathon for the kids has been hard work, I know that they are all sad to see it be over. It really was a blessing for us all and the kids got so excited when it was time for math, some even cried when it was rainy outside and we couldn't run. I am so proud of the kids, they truly have been good sports and had a determined, positive attitude every day. This has all turned out so much better than I could've ever expected and I can't tell you how much this experience means to me. I pray that this forever lives within the students' hearts as it will in mine. They are amazing and I will never forget this! May today be a glorious day for all!
Much love,
Lacy
Ps. Below are emails from 2 girls who have shared the same experience as me and felt called to contact me after reading my blog. What a blessing!! I pray that God works with in our hearts to stick together and continue to be his disciples fighting against CJD and all of its cruelties. I just wanted to share their stories with you to continue to spread the word. Please check out their blogs and pass them onto others you know. I thank you so much for your support. The journey isn't over, there are many others just like me out there that need your help. We desperately need to know more!
Lacy,
My mom called me today after she read the most recent CJD newsletter. She began reading me posts from your blog and I immediately had to get in touch with you. I lost my dad in February to the familial CJD and found unbelievable strength in your blog. My brother and I completed a run this summer in his honor (just like you and the marathon) and it made me smile. With it being so rare, it is hard for people to completely understand it. I have started a blog as well, as well as writing seperately in hopes of one day publishing a book. My dad was only 54, so you can understand how unbelievably tragic it all is. How are you coping. I definitely have low days, and my mom too. I would love to maybe team up and start a charity in the future or something. I dont know. But it is my passion to live for my dad. I just want you to know how lucky I feel to now have a blog to read where someone understands my head. And I cant wait to hear how the marathon went....congratulations!!!!!!!!!!!!!!!!!!!!!!!!!!
Sincerely,
Hilary Kelley
http://hilarmy.blogspot.com/
Dear Family and Friends,
Our family is holding an awareness walk entitled Footwork for CJD: A Pathway to Hope and Awareness. We would love your help! The walk will be held on Saturday, November 15 at Duvall-Rosier Field on the campus of Fairmont State University. We will hold registration at 9:00 a.m. with the walk to begin at 10:00 a.m. We will have a memorial lap followed by a balloon launch. Please let me know if you would like to help. If you are located nearby I will provide you with an actual registration packet and if you are further away I can e-mail you a file. If you are located REALLY far away you can still help us collect donations and mail them to me.
Thank you all once again for the love and support you have shown during this time. We have made a lot of progress in the fight against CJD and other prion diseases but there is still so much work to be done!
God's blessings to you always,
Nikki
curecjd@gmail.com
www.cjdhope.blogspot.com
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