Run Lacy, Run for CJD (Creutzfeldt-Jakob Disease): 1 week from today....

Sunday, September 28, 2008

1 week from today....

I will be running a marathon!! Oh my goodness!! I can't believe it is already next weekend. Time sure does fly. When I started the training back in June I was thinking that it would be a long summer of running, but it truly wasn't that bad. Being consistent with the training really does allow you to move forward through the miles. I still can't believe where I'm at now. Three months ago I was thinking that it was an insurmountable task, but God continues to show me that anything is possible with Him by my side. Even though I'm really excited for the marathon, I'm also quite nervous. I was thinking my short runs this past week would be a piece of cake, but for some reason my legs have been feeling really heavy. This places doubt in my mind that I will be able to accomplish 20+ more miles. Please pray for me that this week is low key and I feel refreshed and energized to shine God's light through the marathon. I'm definitely going to look up the massage schools around the area and get in for a massage at a decent price. I think that my body would really like that! I'll probably even get one after the marathon as well. Heck...I deserve it!

Just an FYI. If you are interested in watching me run the marathon, I have some good news for you. The run actually goes right by my house so I was thinking that all family and friends could bring their lawn chairs to the end of my driveway and hang out there. It should work out well, because there is plenty of space and people can even use the bathroom in the house and not have to venture a Biff experience. I was also thinking that people could bring food, drinks and meat to girl and we could all have lunch together when I come back from the race to celebrate. Doesn't that sound great? My house is at mile 8 on the course so I won't be that far a long, but that doesn't matter. I just want to make it easier for people to come. The support will be so awesome! The race starts at 8am so if you want to see me pass by my house I would make sure to be there no later than 9am. It would be wise to plan ahead, because I'm sure several streets to directly get to my house will be closed so I'm thinking you might have to do some run around. If you are interested in joining in on the fun, please shoot me an email to let me know and I can give you more information. Thank you for your continued love and support!
Have a great Monday!
-Lacy
Here is more info on road closings for that day:
Area around Metrodome:
From 5th Avenue to 11th Avenue and from 6th Street to 3rd Street will be closed at 5:00am for start line setup and will reopen at approximately 9:00am.
Course: Traffic turning onto the course will be shutdown at 7:30am. Cross traffic will be allowed to flow until the wheel chair athletes begin to approach. Once cross traffic is closed, please refer to the chart below for crossings.
Mile Crossing Points
Miles 0-1 - Use side streets to I-94 or 35W
- Head south and cross racecourse intermittently at Lake Street
Miles 3-8 - Head south and cross course intermittently at 50th
- Head to Nicollet and cross racecourse there
Miles 8-12 - If you are East of Parkway: Cross via 54th/ Diamond Lake Road
- If you are South of racecourse: Cross at 54th Street
- If you are North of racecourse: Go South to 50th, and East to Nicollet to cross racecourse
*Nicollet and 35W are North/South Crossings
Miles 12-15 - If you are North of racecourse: Cross at 46th or
42nd
- If you are South of racecourse: Cross at 56th Street
Miles 15-21 - Take nearest thru street to freeways
- Lake Street crosses the racecourse without delays

Saint Paul Road Closures:
Area around State Capitol:
Northbound John Ireland Blvd will close Thursday, October 2nd at 9:00am.
Rev. Dr. Martin Luther King Jr. Blvd. and Aurora Avenue will close Friday, October 3rd at 9:00am.
12th Street from Wabasha to John Ireland Blvd. will be closed Saturday, October 4th from 7:00am to noon and on Sunday, October 5th from 6:30am to 6:00pm
Course - Saturday: John Ireland Blvd. and Summit Avenue (to Grotto) will be closed at approx. 8:20am until approx. 11:30am.

Course - Sunday: Traffic turning onto the course will be shutdown at 6:50am with intermittent traffic allowed to cross between approx. 8:30am and 9:00am. After 9:00am, cross traffic will again be closed until approx. 2:00pm. Please refer to the chart below for available crossings.

Miles 20-21 - Take nearest thru street to freeways
- Lake Street crosses the racecourse without delays
Miles 21-26 - Take Ayd Mill or Grand Avenue into downtown St. Paul and head around Capitol area
- Ford Parkway crosses the racecourse without delays

Link to Twin Cities Marathon Spectator Guide:
http://www.mtcmarathon.org/Upload/documents/039%2D1362k%5FSpctr%5FGuid08%5Fd6rdrs.pdf

Link to Twin Cities Marathon Course Route:
http://www.mtcmarathon.org/PDFs/08StartLineMap.pdf

2 comments:

Irene Hunter said...: Hi Lacy,

I found your site through the link in the CJD newsletter. I'm 26 years old and my dad passed away in June of this year from CJD and it was horrible. Some family friends set up a blog from him here: http://www.tomhunterblog.blogspot.com/ and then my family and I have been posting updates along the way on the Beautiful Nighttime link from that page or you can view them here: http://atimeforsharing.livejournal.com/

As hard as this all has been it's good to know that other people are getting through it ok and it's so inspiring to hear that you are running a marathon in honor of your dad, that is so cool! I'll be cheering you on from Bellingham, WA. It sounds like your dad was an amazing man, I am so lucky to have been blessed with an awesome dad as well. I miss him more than anything and it still really, really hurts but I'm getting through it. Thank you for sharing your story, it really is inspirational.

Take care and good luck,

Irene Hunter; September 29, 2008 at 1:50 PM
Anonymous said...: Lacy,
My mother became ill towards the end of September of 2007. She was diagnosed with CJD November 2, 2007 and passed away November 30, 2007. Your story on the CJD newsletter caught my eye because my mother was also 57 and followed a very similar time line. She went from being an active high school Spanish teacher and department chair to being completely disabled in such a short time. Naturally, I think of her every day and try my best to not think of her with the disease, but to remember the good times. However, entering into fall I am reminded of such a horrible fall last year and the feelings of uncertainty and then hopelessness. Living without her is getting easier with time, but thinking about CJD still chills me to the bone.
Good luck on the marathon and spreading the word about CJD. Your blog has such wonderful faith and purpose. God bless you, Jodi; September 29, 2008 at 7:23 PM

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My Story

Just about 1 year ago my dad was a healthy, active and happy 57 year old man making the most of his retired life. However, in mid-July 2007 he became very stressed by the death of his father and soon after started to complain of some visual problems. On August 3rd, the day I came home for a visit from Guatemala, my dad went to the doctor because he was concerned that he may have had a stroke. His doctor was not convinced and told him that he just needed to visit the eye doctor for a new pair of glasses. It seemed logical that his vision would get worse since he was getting older and he hadn't seen the eye doctor in over 8 years. However, we quickly noticed that it wasn't only his vision problems affecting him as his mood was more down, he was slower, he couldn't sign his own name, he became more forgetful and his hand-eye coordination was off. One week he was able to drive up to the Boundary Waters and the next week he could barely drive more than a mile, swerving in and out of the lines. These drastic changes made us act quick so we brought him down to the VA hospital in the cities. What we thought would just be a day visit ended up turning into a week of testing. A neurologist and his team of medical students examined my dad and the puzzled looks on their faces and the lack of information they gave us started to make us think that this was something serious. Our assumption was correct because on Friday of that long week and after a shocking abnormality discovery from the EEG, they revealed to us their findings. They narrowed down what my dad was possibly suffering from to two diseases, Hashimoto Enepholopathy or Creutzfeldt-Jakob disease. Both conditions are very rare, but we were hopeful in that one had a cure. My dad returned early the following week for a few more tests specific for diagnosing these two diseases. A week later we received news that they ruled out Hashimoto Encepholopathy, which unfortunately was the one with a cure. A few weeks went by and my dad quickly started to regress going from one week being able to walk on his own and the next only being able to take a few steps. After a long wait, we finally received the results back from the second spinal tap which revealed that my dad's Neuron Specific Enolase count came back as 163 when it normally should be 16. This is indicative of active neuron cell death and also characteristic of CJD. They further explained that his MRI showed areas of positive diffusion in his ocipital lobe which is another sign of CJD and also, explains his vision problems in the beginning. Because this disease can only be conclusively diagnosed with a brain biopsy after death, the Doctor stated that he was sure that my dad has Sporadic Creutzfeldt-Jakob disease with a Heidenhain variant. The disease is very difficult to explain and to avoid making this introduction any longer, I encourage you to visit the CJD foundation website to learn more. We decided to care for my dad at home as those were his wishes and we wouldn't have wanted it any other way. His suffering ended on October 6th, 2007 and he is now full of joy with God in heaven.

What is CJD (Creutzfeldt-Jakob Disease)?

Prion diseases are a group of rare, invariably fatal brain disorders which occur both in humans and certain animals. They first came to public attention in the mid 1980s in the form of the BSE epidemic in the United Kingdom. BSE (bovine spongiform encephalopathy) is a prion disease in cattle. Tissue from infected animals may have contaminated cattle feed, leading to the silent spread of the BSE epidemic. There is also a theory that BSE came from feed contaminated with scrapie, the long established sheep prion disease. Inevitably, concern over whether BSE could pass to humans mounted.In humans the best known of the prion diseases is Creutzfeldt-Jakob Disease (CJD), which reportedly affects around one person per million per year. In the United States this translates to 250-300 new cases per year. It is well known that CJD is very difficult to diagnose leading to speculation that the one case per million report may be incorrect. Most of the cases are "classical" or "sporadic" CJD (sCJD), occurring for no, as yet, known reason. The sporadic form accounts for approximately 85% of the cases, the familial form approximately 15%. There have also been a few cases which have occurred from contamination via medical procedures; this type is known as iatrogenic or Acquired CJD. Finally over the last few years, another type of Acquired CJD called variant (vCJD) has been identified in young people. vCJD has been linked to ingestion of beef tainted with BSE (bovine spongiform encephalopathy), most cases have occurred in the United Kingdom.

How to Support

If you would like to send a donation please do so to:
TCF Bank
7800 Penn Ave S
Bloomington, MN 55431

Or you can send your donation to my home address:
Lacy Hladky
5148 Lyndale Ave S #2
Minneapolis, MN 55419

Or you can visit any TCF bank and deposit your donation in the Lawrence Hladky CJD Benefit Account #6439197637

Make all checks payable to: Lawrence Hladky CJD Benefit Account
Please write the account # in the memo section: 6439197637

I will be accepting donations up until the day of my dad's 59th birthday, October 24th. The total of the donations received will be split and half will go to the CJD Foundation to help spread more awareness and the other half to the CJD Surveillance Center to help with more research to find a cure.

Thank you so much for your generosity. It is very much appreciated!

My Training Schedule

Beginner Plan

Week	M	T	W	T	F	S	S	Total
1*	Rest	4 miles	Rest	1-hour run	Rest	4 miles	6 miles	15-16 miles
2	Rest	4 miles	Rest	1-hour run	Rest	4 miles	7 miles	15-16 miles
3	Rest	4 miles	Rest	6 miles	Rest	Rest	8 miles	18-19 miles
4	Rest	4 miles	Rest	6 miles	Rest	Rest	9 miles	18-19 miles
5	Rest	4 miles	Rest	4 miles	Rest	5-K race	6-8 miles	19-21 miles
6	Rest	5 miles	Rest	7 miles	Rest	Rest	10 miles	22-24 miles
7	Rest	5 miles	Rest	7 miles	Rest	Rest	12 miles	22-24 miles
8	Rest	5 miles	Rest	8 miles	Rest	Rest	12 miles	25-27 miles
9	Rest	5 miles	Rest	8 miles	Rest	Rest	14miles	25-27 miles
10	Rest	5 miles	Rest	4 miles	Rest	10-K race	5 miles	24 miles
11	Rest	5 miles	Rest	9 miles	Rest	Rest	16 miles	30-32 miles
12	Rest	5 miles	Rest	9 miles	Rest	Rest	18 miles	30-32 miles
13	Rest	5 miles	Rest	10 miles	Rest	4 miles	20 miles	39 miles
14	Rest	5 miles	Rest	10 miles	Rest	4 miles	10 miles	29 miles
15	Rest	3 miles	Rest	5 miles	Rest	3 miles	5 miles	16 miles
16	Rest	3 miles	Rest	3-mile jog	Rest	2-mile jog	Marathon

Larry Hladky an Inspiration to Many...

For those of you who don't know my dad he was truly an amazing man. There are no words to describe just how special he was to me and so many others. He was such an easy-going man who always strived to have fun with every day that was given to him. He was so young at heart and loved to bring joy to all around him. He was not only giving of his money, but especially of his time. He was a Vietnam vet, he worked for many years as a machinist, he was a loving husband, caring father, special brother, fun uncle, loyal friend and a legend high school tennis coach in Becker. My dad is truly an inspiration to me and I thank God every day for the honor of being his daughter. Throughout his sufferings he was so patient, so humble, so strong and so full of love for God. He made the most of the situation to bring smiles to our faces either by making wierd looks or saying something so funny just out of the blue. He was such a light of the comfort that God's love brings because even as he cried and we quickly rushed to be by his side and hold him, he instead comforted us by saying, 'I'm happy.'

Romans 5:1-5'Therefore, since we are justified by faith, we have peace with God through our Lord Jesus Christ. Through him we have obtained access to this grace in which we stand and we rejoice in our hope of sharing the glory of God. More than that, we rejoice in our sufferings, knowing that suffering produces endurance, and endurance produces character, and character produces hope, and hope does not disappoint us, because God's love has been poured into our hearts through the Holy Spirit which has been given to us.'

Run Lacy, Run for CJD (Creutzfeldt-Jakob Disease)

Sunday, September 28, 2008

1 week from today....

2 comments:

My Story

What is CJD (Creutzfeldt-Jakob Disease)?

Blog Archive

About Me

Current Amount Raised

How to Support

Informative Websites

My Training Schedule

Larry Hladky an Inspiration to Many...